(1) Information held in the donor registry which identifies a donor is confidential and exempt from s. 119.07(1) and s. 24(a), Art. I of the State Constitution.
(2) Such information may be disclosed to the following:
(a) Procurement organizations that have been certified by the agency for the purpose of ascertaining or effectuating the existence of a gift under s. 765.522.
Terms Used In Florida Statutes 765.51551
- Agency: means the Agency for Health Care Administration. See Florida Statutes 765.511
- Donee: The recipient of a gift.
- Donor: means an individual who makes an anatomical gift of all or part of his or her body. See Florida Statutes 765.511
- Donor registry: means a database that contains records of anatomical gifts and amendments to, or revocations of, such gifts. See Florida Statutes 765.511
- gift: means a donation of all or part of a human body to take effect after the donor's death and to be used for transplantation, therapy, research, or education. See Florida Statutes 765.511
- person: includes individuals, children, firms, associations, joint adventures, partnerships, estates, trusts, business trusts, syndicates, fiduciaries, corporations, and all other groups or combinations. See Florida Statutes 88.6011
- Procurement: means any retrieval, recovery, processing, storage, or distribution of human organs or tissues for transplantation, therapy, research, or education. See Florida Statutes 765.511
(b) Persons engaged in bona fide research if the person agrees to:
1. Submit a research plan to the agency which specifies the exact nature of the information requested and the intended use of the information;
2. Maintain the confidentiality of the records or information if personal identifying information is made available to the researcher;
3. Destroy any confidential records or information obtained after the research is concluded; and
4. Not directly or indirectly contact, for any purpose, any donor or donee.