Illinois Compiled Statutes 410 ILCS 460/131-25 – Study
Current as of: 2024 | Check for updates
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(a) Before July 1, 2022, and on a biennial basis thereafter, the Department, with the assistance of:
(1) the Center for Minority Health Services;
(2) health care providers that treat individuals with
(1) the Center for Minority Health Services;
Terms Used In Illinois Compiled Statutes 410 ILCS 460/131-25
- State: when applied to different parts of the United States, may be construed to include the District of Columbia and the several territories, and the words "United States" may be construed to include the said district and territories. See Illinois Compiled Statutes 5 ILCS 70/1.14
(2) health care providers that treat individuals with
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sickle cell disease;
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(3) individuals diagnosed with sickle cell disease;
(4) representatives of community-based organizations
(4) representatives of community-based organizations
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that serve individuals with sickle cell disease; and
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(5) data collected via newborn screening for sickle
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cell disease;
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shall perform a study to determine the prevalence, impact, and needs of individuals with sickle cell disease and the sickle cell trait in Illinois.
(b) The study must include the following:
(1) The prevalence, by geographic location, of
(b) The study must include the following:
(1) The prevalence, by geographic location, of
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individuals diagnosed with sickle cell disease in Illinois.
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(2) The prevalence, by geographic location, of
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individuals diagnosed as sickle cell trait carriers in Illinois.
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(3) The availability and affordability of screening
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services in Illinois for the sickle cell trait.
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(4) The location and capacity of the following for
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the treatment of sickle cell disease and sickle cell trait carriers:
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(A) Treatment centers.
(B) Clinics.
(C) Community-based social service organizations.
(D) Medical specialists.
(5) The unmet medical, psychological, and social
(B) Clinics.
(C) Community-based social service organizations.
(D) Medical specialists.
(5) The unmet medical, psychological, and social
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needs encountered by individuals in Illinois with sickle cell disease.
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(6) The underserved areas of Illinois for the
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treatment of sickle cell disease.
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(7) Recommendations for actions to address any
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shortcomings in the State identified under this Section.
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(c) The Department shall submit a report on the study performed under this Section to the General Assembly.