13-60-105. Prohibited disclosures. A direct-to-consumer genetic testingcompany may not disclose a consumer‘s genetic data without the consumer’s written consent to:
(1)
an entity that offers health insurance, life insurance, or long-term care insurance; or
Terms Used In Utah Code 13-60-105
company: means an entity that:
(a)
offers consumer genetic testing products or services directly to consumers; or
(b)
collects, uses, or analyzes genetic data that a consumer provides to the entity. See Utah Code 13-60-102
Consumer: means an individual who is a resident of the state. See Utah Code 13-60-102
Genetic data: includes :
(i)
raw sequence data that result from sequencing all or a portion of a consumer's extracted DNA;
(ii)
genotypic and phenotypic information obtained from analyzing a consumer's raw sequence data; and
(iii)
self-reported health information regarding a consumer's health conditions that the consumer provides to a company that the company:
(A)
uses for scientific research or product development; and
(B)
analyzes in connection with the consumer's raw sequence data. See Utah Code 13-60-102
Genetic testing: means :
(a)
a laboratory test of a consumer's complete DNA, regions of DNA, chromosomes, genes, or gene products to determine the presence of genetic characteristics of the consumer; or